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Haemophilia in Aotearoa New Zealand: More Than A Bleeding Nuisance
  

Haemophilia in Aotearoa New Zealand: More Than A Bleeding Nuisance (Hardback)

By Park, Julie
By Scott, Kathryn
By York, Deon
By Carnahan, Michael

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Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on long-term ethnographic research. The chapters consider experiences of diagnosis; how parents, children and adults care, and integrate medical... read full description below.

ISBN 9780367134440
Barcode 9780367134440
Published 4 March 2019 by Taylor & Francis Ltd
Format Hardback
Series Routledge Studies in Health and Medical Anthropology
Availability
Indent title (internationally sourced), usually ships 4-6 weeks

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Full details for this title

ISBN-13 9780367134440
ISBN-10 0367134446
Stock Available
Status Indent title (internationally sourced), usually ships 4-6 weeks
Publisher Taylor & Francis Ltd
Imprint Routledge
Publication Date 4 March 2019
International Publication Date 29 January 2019
Publication Country United Kingdom United Kingdom
Format Hardback
Author(s) By Park, Julie
By Scott, Kathryn
By York, Deon
By Carnahan, Michael
Series Routledge Studies in Health and Medical Anthropology
Category Haematology
Medical Anthropology
NZ, Maori & Pasifika
New Zealand & Related
Number of Pages 218
Dimensions Width: 159mm
Height: 235mm
Weight 476g
Interest Age 19+ years
Reading Age 19+ years
Library of Congress Hemophilia - New Zealand, Hemophiliacs - New Zealand
NBS Text Clinical Medicine: Professional
ONIX Text College/higher education
Dewey Code 616.157200993
Catalogue Code 974379

Description of this Book

Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on long-term ethnographic research. The chapters consider experiences of diagnosis; how parents, children and adults care, and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. Whilst the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

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Author's Bio

Julie Park is Professor Emerita of Anthropology at the University of Auckland, New Zealand. Kathryn M. Scott works in social research and advocacy. She is an Honorary Research Fellow in Anthropology at the University of Auckland, New Zealand. Deon York works in the health sector. He is currently President of the Haemophilia Foundation of New Zealand (HFNZ) and on the Board of Directors of the World Federation of Hemophilia (WFH). Michael Carnahan has worked in health services management and is former President of the Haemophilia Foundation of New Zealand (HFNZ).

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